To those of you that know me, I’m sure you’ve realized by now that I am sort of drawn to people with developmental disabilities. It’s the career path I’ve chosen - not for me, but because I love them. I love going to work every day and helping people with disabilities become an active part of society and hold important roles. I recently attended a training at work on community inclusion. The teacher started out by giving us a piece of paper with a circle on it (everyone should try this). In that circle we drew pictures of people who were our closest friends/family whatever, people we knew that got us through every day. So my circle had a picture of a steeple (that’s all I can really draw lol) a stick figure of my husband, circle faces representing all my closest friends, my family, and my clients that I adore(for those of you who know Richie, Katie, and Mike ;). I was feeling pretty proud of my circle not completely understanding why I drew it when the teacher asked us what kind of stuff we had in there. "Church? Family? Friends at work? etc…" and then she asked us, “Out of everyone in your circle, who is paid to be there supporting you? Cross out everyone that is not paid.” Shocked and feeling sad about crossing everyone off I just made check marks next to everyone and of course no one was left. Then she told us to take a look into the lives of our consumers that we support, how many people do they have that are still in their circle. For most of the people that we support at work it isn’t much. (People with developmental disabilities aren’t the only ones that live with many of their relationships being paid. There is also the homeless, mentally ill, institutionalized, and others.)
I love my consumers/clients but I am one of the people that is paid to help them, along with their doctor, psychiatrist, care home provider, transportation, and the list goes on and on. Many days after I leave my consumer they don’t have any more contact outside of their care home, the person that takes care of them and the other residents. That is where my job came in. “Officially” my title is Employment Training Specialist and I work one-on-one with consumers and job coach them in volunteer and paid sites in areas that they enjoy. At these sites I support them so they can work hard and become a part of their community. It is at these sites that they make friends that know their names, appreciate them for the work they do and really give them value. I have one consumer that volunteers at the food bank in Sacramento, as many people know, it is very large. When we walk in everyone knows his name and treats him like he’s the best thing that’s ever happened. Many of us have that in our jobs now, in our churches, and some even in the grocery store, coffee shop and other locations. How often do we take this for granted? We’re able to make and keep these relationships that many others so often do not have.
A Thank YouTo go on with this subject, last night Devon and I went out to listen to music in the park, a concert that goes on every Friday night in Sac. There we just sat in the grass enjoying the music and watching the hundreds of people and their families. We really enjoyed it, but one of the people I noticed had a disability. He was older, there with his family and wearing sponge bob pajamas, and dancing to and enjoying the music and company. After the concert we went for a walk and ended up at an ice cream parlor; a VERY packed ice cream parlor. I was watching a family leave and noticed a teenage boy whose father was walking behind him holding his shoulders because he was anxious and he began flapping his hands - q sure sign of this boys autism. I thought about how wonderful it was that his family was able to take him to a place like this an enjoy the night, which was probably hard for the son but he was able to go and enjoy ice cream as well. When I told Devon about it he pointed out another high school aged girl with a developmental disability eating ice cream with her parents. All I have to say to these families is thank you. Thank you for getting your children/siblings/friends out there and involved so that they can enjoy society as well and society can learn more about them.
It has been a dream/desire of mine to adopt a child with Down syndrome for a while now. I love the loving spirit that they bring into their families and the pure goodness of their hearts. I think that most my family thinks that I am crazy and maybe it is too much but I think that because of my career choices and experiences I’ve been blessed with I can create a home that pushes that child to be the best that they can be and love and support them so that they are able to become that person that people look to. The one in the food bank that everyone knows, or the one working the door at the temple and greeting everyone. There are so many opportunities that people with disabilities can be given if we just allow it to happen. It is my hope that people in society can let go of the stigma that goes along with all disabilities and just to learn to love people as they are; children of our Heavenly Father. I hope that we can all do our part in keeping this up.